Genetics 2: Whole genome sequencing, Gattaca, de-identification versus anonymity, and Big Data Towers of Babel

00:00

In this episode we pick up our conversation with clinical geneticist Melody Redman to talk about a new NHS programme in England which is piloting whole genome sequencing of newborn babies. Why are scientists and doctors interested in collecting a child’s entire set of genes and storing them for the rest of their life? What medical benefits might result from this, and what ethical challenges does it throw up? Just because we can now do this, should we? We also consider some of the risks of our increasingly geneticised world and how as Christians we can hold onto our identity in Christ rather than lapsing into genetic determinism.
Find out more about the Newborn Genomes Programme here - https://www.genomicsengland.co.uk/initiatives/newborns
The group Unique helps support people and families affected by rare chromosomal and genetic disorders - https://rarechromo.org/
Subscribe to the Matters of Life and Death podcast: https://pod.link/1509923173

Released on 17 Aug 2022

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select * from `audio_series` where `audio_series`.`brand_id` = 85 and `audio_series`.`brand_id` is not null and ((not exists (select * from `brands` where `audio_series`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `audio_series`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `audio_series`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:105 view::components.sections.sub-menu-brand:29 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

ContentFamilyTrait.php#18premier820μs

select * from `article_series` where `article_series`.`brand_id` = 85 and `article_series`.`brand_id` is not null and ((not exists (select * from `brands` where `article_series`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `article_series`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `article_series`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:106 view::components.sections.sub-menu-brand:29 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

ContentFamilyTrait.php#18premier780μs

select * from `podcasts` where `podcasts`.`brand_id` = 85 and `podcasts`.`brand_id` is not null and ((not exists (select * from `brands` where `podcasts`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `podcasts`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `podcasts`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:107 view::components.sections.sub-menu-brand:29 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

Podcast.php#137premier460μsselect * from `brands` where `brands`.`id` = 85 and `brands`.`deleted_at` is null limit 1

Bindings	0: 85
Backtrace	app/Models/Podcast.php:137 view::components.sections.sub-menu-brand:32 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58 vendor/livewire/livewire/src/ComponentConcerns/RendersLivewireComponents.php:69

ContentFamilyTrait.php#18premier710μs

select * from `brand_pages` where `brand_pages`.`brand_id` = 85 and `brand_pages`.`brand_id` is not null and ((not exists (select * from `brands` where `brand_pages`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `brand_pages`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `brand_pages`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:104 view::components.sections.sub-menu-brand:38 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

ContentFamilyTrait.php#18premier840μs

select * from `audio_series` where `audio_series`.`brand_id` = 85 and `audio_series`.`brand_id` is not null and ((not exists (select * from `brands` where `audio_series`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `audio_series`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `audio_series`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:105 view::components.sections.sub-menu-brand:38 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

ContentFamilyTrait.php#18premier800μs

select * from `article_series` where `article_series`.`brand_id` = 85 and `article_series`.`brand_id` is not null and ((not exists (select * from `brands` where `article_series`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `article_series`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `article_series`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:106 view::components.sections.sub-menu-brand:38 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

ContentFamilyTrait.php#18premier640μs

select * from `podcasts` where `podcasts`.`brand_id` = 85 and `podcasts`.`brand_id` is not null and ((not exists (select * from `brands` where `podcasts`.`brand_id` = `brands`.`id` and `brands`.`deleted_at` is null)) or (exists (select * from `brands` where `podcasts`.`brand_id` = `brands`.`id` and `is_active` = 1 and `brands`.`deleted_at` is null))) and `is_active` = 1 and `podcasts`.`deleted_at` is null

Bindings	0: 85 1: 1 2: 1
Backtrace	app/Models/Traits/ContentFamilyTrait.php:18 app/Models/Brand.php:107 view::components.sections.sub-menu-brand:38 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58

Setting.php#20premier430μsselect * from `settings` where `setting_key` = 'web_donation_link' limit 1

Bindings	0: web_donation_link
Backtrace	app/Models/Setting.php:20 app/Helpers/Settings.php:6 vendor/laravel/framework/src/Illuminate/Filesystem/Filesystem.php:110 vendor/laravel/framework/src/Illuminate/View/Engines/PhpEngine.php:58 vendor/livewire/livewire/src/ComponentConcerns/RendersLivewireComponents.php:69

App\Models\Brand: 7Brand.php#?
App\Models\Podcast: 7Podcast.php#?
App\Models\Setting: 6Setting.php#?
App\Models\PodcastEpisode: 5PodcastEpisode.php#?

section-podcast-player #eOXCNT3AaAMUsVnRiVto: array:5 [ "data" => array:10 [ "podcast" => App\Models\Podcast {#2065 #connection: "mysq...

_token: D5gMcKQ624rnIWbrFX0P9L7avbqnbP5Yhhaol7e6

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	Date ↕	Method	URL	Data
#1	2025-06-20 21:07:17	GET	/matters-of-life-and-death/podcasts/episodes/genetics-2-whole-genome-sequencing-gattaca-de-identification-versus-anonymity-and-big-data-towers-of-babel	64 40 25 1

Genetics 2: Whole genome sequencing, Gattaca, de-identification versus anonymity, and Big Data Towers of Babel

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